I had my second child, I was very nervous, especially when I remembered
the ordeal I underwent during the course of my first child. Lots of
thoughts crossed my mind; I was mostly concerned about having a sickle
cell crisis and being pregnant: I knew the statistics and the
accompanying consequences, but I was determined to go ahead with my
decision to have another baby.
I just had to bring a sibling for
my son. Having sickle cell and conceiving is associated with both
maternal and fetal complications as well as heightened incidences of
perinatal mortality, premature labour, fetal growth restriction, acute
painful crises during pregnancy, early caesarean section, maternal
mortality and an elevated risk of pre-eclampsia.
I noticed many
of these symptoms when I was pregnant with my son. It was so bad that I
was hospitalized for four weeks before giving birth to him five weeks
early; the thought of this uncertainty and risk left me very worried and
scared. However, after a few years passed, I said to myself that there
was no way I should put off having another child only because I was
afraid. I decided to have a planned pregnancy where I would be able to
work with my doctors from the very beginning to see me through the
My second pregnant, like the first one, started
off great, with very little morning sickness, I was eating well and all
my observations were always perfect, even the monthly scan of the fetus
was great. My baby was growing well and all her measurements were on the
right track. My medical teams were fantastic and used to see me on a
monthly basis to ensure that I was doing well, physically and mentally.
was seen on a monthly basis by my hematologist team as they managed my
sickle cell along with the antenatal doctors, who managed the baby.
during my third trimester, I started to notice some changes such as
decreased appetite, aggressive itchiness, jaundice, dark urine, which my
doctors diagnosed as cholestasis and pruritis, swollen feet, and
frequent sickle cell pains all over my body.
To add to my woes, I
had a history of hyperheamolysis, which made it impossible to receive
blood even though my hemoglobin level was low and dropping every time I
did a blood test. I got so bad, that I had stopped going out, as I
couldn’t walk more than a 100 yards at a time.
My sickle cell got
worst each day, but I was lucky that I was managed by the best doctors
who understood my condition innately and did everything that they could
to ensure that my baby and I got out of any ordeal unscathed.
conclusion, the whole experience changed me from within and gave me a
new gratitude for life. I appreciated the work of all doctors and found
meaning in the adage: where there is health there is wealth. I spent a
lot of my stay in hospital thinking about myself, and the fact that I
would have not survived had I not been given such great treatments.
advice to women suffering from sickle cell and planning on having
babies is to listen to your body and work very closely with your
doctors. It is very important to listen to your body and look out for
subtle signs of changes and don’t ignore them. These are ways of your
body telling you that something is wrong. Take things easy and try not
to overdo anything.
Eat well and if you notice you are losing
your appetite significantly, eat what your body craves, so that you
don’t go without food and drink a lot of fluid.
Anne Welsh, a
Sickle Cell sufferer and activist, PR and Crises Management consultant
and businesswoman with two children under the age of 8, is working on a
book called Overcoming My Invisible Battle. This book will shine the
light on Anne Welsh living with the disease and her coping mechanisms.
is a whole-hearted exponent of the view that Sickle cell has a big
effect on women who are pregnant especially when it is poorly managed.
Reliving the events of second pregnancy has reminded Anne Welsh to stay
focus on her commitments to break the stigma for individual living with
Sickle cell around the world especially in sub-Saharan Africa where the
disease is common. Some photos below;